Quote:
Originally Posted by Aaron1980
Dr. Nase,
What do you suggest we do? Would a letter to the NRS and their staff have any real effect?
What about a Blog or website?
Walked into my derm's office last week and there were 7 Galderma pamphlets on the wall magazine holders and the reception desk. He is now handing out three small tubes of Metrogel and Oracea.
The pamphlets showed red faces on one side and happy smiling faces on the other side. This is very wrong.
Maybe just ask them to tone it down and state that those with very mild cases may respond to this treatment. That might be a good starting point?
Any thoughts?
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Aaron,
I would recommend focusing on modifying what type of grants are funded. What I mean is that our disorder is the only inflammatory skin disorder that has one major pharmaceutical company developing a non-profit organization. So, they cannot test their own products... and thus other products in order to grade their effectiveness. Kind of shooting ourselves in the foot. It's been 9 years now and we dont have one single treatment that has been developed as a result of NRS Grants.